Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, November 25, 2008

Little Mav continues to do well. His BUN is in the 80's today. His weight is down and they have started weaning him from the ventilator. He's had a few issues pop up - he has diarrhea now caused by an overgrowth of bacteria in his intestines. He's been on so many antibiotics, it's not surprising. His little bottom is very raw as well and has a spot that is draining serous fluid. It looks so painful. The wound care nurse has been in and they're putting a concoction of different things on it. Pray that this will heal and he'll get over the diarrhea quickly.

Greg, the kids and I are enjoying our time together. The little ones get a little antsy being at the hospital too much, so we're trying to split up our time. It's just hard for me to leave Mav, though, especially when he's awake. We're very thankful for the house we're staying at. It's been nice to be together and closer to Mav - it's a little more close to normal. I'm just ready to have him home. Thanks for all your posts - I enjoy hearing from you all - love, jc


Anonymous said...

He really looks great. We are still praying for all of you. Please let us know if there is anything we can do at the house. We're just right around the corner. Grace be to all of you. Happy Thanksgiving!
The Hannas

Anonymous said...


You continue to be in my prayer, I know that this time in your family's life is a rollercoaster. I do understand the tremendous toll this is taking on you. Hang in there. He is a beautiful little man. He is a fighter. Call me after the holiday's if you have time to talk. Tara.