Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, November 8, 2008

Mav is doing about the same today. His weight is stable - no losses, but no gains either. They're trying to wean his paralyzing medicine still to see if he'll tolerate it. He's just starting to try to open his eyes. Greg made it home with the kids. My mom is coming down here tomorrow to stay with me this week. All his drips are just about the same. His vital signs are stable. Progress is slow, but at least we're not losing ground. jc

1 comment:

Kim said...

Juli,
Thinking about you and Maverick this morning. I try, wholeheartly, to put myself in your position while I pray for you. I know that this has been a hard road for little Mav, but I cannot fathom how truly difficult it's been on you as his mom. Our children become our hearts. To sit and watch him each day would be numbing, yet you continue to find strength and encouragment through Jesus Christ. Know you are the bar I hold myself up to each time I think I am having a "hard" day. I am in awe of your stamina. Thanks for reminding me what being mom is truly about, unselfish and neverending love for our children. (No matter how difficult the road before may seem) I love you-
Kim