Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, November 14, 2008

Setback

Today Mav's urine output and the output from his abdominal drain have decreased and his BUN has been increasing (it's in the 70's). The general surgeon is placing a peritoneal dialysis catheter right now. They'll leave it in for a few days before using it for dialysis. They're having to do this to get some of the fluid off. He had one good day with a loss and since he's been slowly gaining. He also had some more blood cultures drawn today and was started on stronger antibiotics again. His culture from his nasotracheal tube (the ventilator tube that goes to his lungs) was positive - they haven't actually isolated what it is yet, but they think it's pseudomonas and are treating it. Keep little Mav in your prayers. His nurse tonight said, "He is so tough. He has a strong purpose in this world, we just don't understand it yet." He's been through so much, and is such a fighter. I'm confident he'll get through this as well. Love you all - jc
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1 comment:

Anonymous said...

Juli,

We had such a wonderful time on Thursday. It was very, very good to see you and we were overwhelmed to get to see Maverick. My heart attached to him instantly and he looked so amazing - it was hard not to snatch him up and smother him with kisses.

How deeply sad we are for this setback. There just are not words to share that convey how much we care and how our hearts hurt with yours. God is good ...and He's good all the time. We will not stop praying for Mav. and we also pray that you will be able to rest in His goodness even during these times. We love you all so much.

Dorraine Hudson

November 15, 2008 at 8:42 AM

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